Every so often I get emails from PWME on the subject of the controversial methods (treatments?) that go by the names Reverse Therapy, Mickle Therapy and Lightning Process. These talking mind/body therapies have only recently appeared in the world of ME/CFS. Now, if I myself were helped by something, I too would spread the word like a tambourine-shaking evangelist, so I am not offended by these stories. I am, however, baffled by them. Completely baffled. I don't understand how rearranging the mental furniture could cure ME, any more than it could cure MS or Epilepsy or Parkinson's. Yet I cannot deny that some people seem to benefit. Do they have the same illness?
I always try to keep an open mind and when I heard about a local hypnotherapist working with PWME, I gave it a try. Long story short - it did not work. Perhaps I did not try long enough but in the end the hypnotist implored that if I didn't believe in him, the outcome would be 'hopeless' and if I did believe in his treatment, then 'it would work'. God, I tried so hard to make that quantum leap in my head. Yet it seemed an ingenious unfairness to pin it all on my beliefs and not his.
I had watched TV hypnotist, Paul McKenna work intensively on a woman with MS to help her get to a family wedding. There were short term, short-lived improvements but McKenna was adamant that he could not cure this woman; he could only give a brief lift to her mind and spirit. She made it to the wedding and the cameras departed after that. I can only guess at the payback.
The other thing about these treatments is the cost. For a full course, you are talking £500 - £1000 for starters. If the therapy was free, I'd try it all. I'd give it hours of effort. Ditto if the therapists gave money-back guarantees. If you paid £49 at the hairdressers and your hair wasn't a millimeter shorter, you'd ask for your money back - why is this different? Therapists have always rejected my request for no improvement / no fee deal. Come on, therapists. Anyone want to prove themselves? If you have real faith in your methods, I'm here. If I get a sustainable improvement, (say, 50% improvement) I'll pay twice or three times as much, and I'll recommend twenty friends. I'm open.