Monday, January 29, 2007

Are you a NANE?

Do you remember that saying, 'Never Apologise, Never Explain'? (NANE). I am not good at being a NANE. I feel like I should toughen up into being a NANE. I am one of these people who will explain that I am going to the kitchen or the bathroom, rather than just walking out of the room or saying 'back in a minute.'
I have been posting less on the blog - and here comes another explanation - as I am caught up in trying the highly controversial Mickle Therapy. I don't wish to dismantle it here on the blog. It is still very early days and there is heavy crossfire of opinion - both in my own head and on the web. I almost feel like a traitor to the cause for trying it. Sssh, stand tall, be a NANE! Dinny flatter yerself; the world can take it.
It is good to see a slight stretch in daylight hours: that extra hem of the day at 4.30pm.
-C

8 comments:

sofamum said...

You're not a traitor! Just an intelligent and open-minded person and I look forward to reading about your experiences and conclusions about Mickle Reverse when you've done the programme.

Because whatever it's benefits or faults I'm sure you won't be brainwashed by it!

Good luck xx

Anonymous said...

You're not a traitor to any cause!

I have ME/CFS. I don't understand how Mickel/Reverse/Lightning can work, and I don't understand how any psychological thing can work when you think of all the physical abnormalities seen in PWME.

But if it works? Then I'd do it!

The other thing that makes it hard for me is thinking that I'd have to believe in it for it to work. I'd need to see a lot of people cured, or proper clinical trials. But if it really works, then I expect that will happen.

The only cause we have is to get better, or, if we can't get better, to live as well as we can.

Anonymous said...

jphello ciara

i don't want to knock what you are doing, and think you are brave to mention it on your blog, and you certainly owe no explanations to anyone.

however, i don't understand how this therapy can help you. judging from your previous posts you don't seem to believe in it. also you have had a brain scan which showed damage from a virus. most of us other ME sufferers have not had the benefit of examinations like this. personally, if i had some concrete evidence of physical illness i would never consider mickel therapy.

we probably all have doubts about controversial treatments like this and feel guilty that we are not doing enough to get better, or are so desperate we would consider almost anything to regain our health. whenever i feel like trying one of these therapies i consider if they would have helped the people who have died as a result of having ME.

i am all for open mindedness, but the treatment has not been independently shown to provide a benefit and the theory behind it has not been submitted to a respected journal and subjected to peer review. this makes me feel suspicious to say the least.

i am sorry if my comments are unhelpful.

best wishes

Ciara said...

Thanks anonymous,

I have thought everthing you have though too. To my great surprise I am seeing some small improvements. I don't know if this is the therapy or not, but I will try it for a few more times to see how I get on...

-C

Anonymous said...

Hello, I'm the anonymous from 8:27 PM again - this is in the paper today -

"For 14 years, Esther Rantzen's daughter Emily had her life destroyed by ME. Trapped in a wheelchair, wasting away, she wanted to die. Now, thanks to radical "mind over matter" therapy, she's cured herself. "


http://www.dailymail.co.uk/pages/live/articles/health/healthmain.html?in_article_id=434248&in_page_id=1774

Sara said...

That’s strange – the Daily Mail said that Emily Wilcox was cured of ME in 2001.


http://www.dailymail.co.uk/pages/live/articles/health/womenfamily.html?in_article_id=79042&in_page_id=1799

ME: how one woman found a cure that works for her
by EMILY WILCOX, Daily Mail - More by this author »

Last updated at 17:02pm on 17th October 2001

After years of suffering ME, Emily Wilcox can go to work and socialise……

Here Emily Wilcox, the 23-year-old daughter of Esther Rantzen, who was diagnosed with ME at the age of 17, reveals what she believes worked for her.

"....at the first meeting with my consultant, Professor Leslie Findley, he said ME is a self-correcting illness. Only 20 per cent of patients remain trapped in it for good. Of the remaining 80 per cent, 60 per cent make a complete return to health and the others have active lives, on condition they pace themselves.

For a long time, I didn't believe these statistics, but now I am forced to admit that Professor Findley's optimism was justified. I have come back to life. I am so improved that I can work, use public transport - and even stay out late sometimes...

If, five years ago, someone had given me a magic pill that cured me totally, I would have put on my knee-length boots and joined my friends to dance the night away - leaving my anxiety and depression to languish on the sofa without me.

As it is, my body has healed itself without much medical intervention. If only the doctors knew how.."


At this rate Emily will be due for another ME cure around 2011

Ciara said...

I wonder how Emily Wilcox is now...I do think we need more follow-up to various experimental treatments. I don't, for a minute, believe Prof Finley's claim that most people get better.

-C

Anonymous said...

did mickel therapy work?